Insecure

I’m approaching my mid-thirties and feel like a dog about to hit adolescence. I’m no longer a cute puppy ‘piddling’ on the floor but a grown dog making a mess. I figure someone is close to calling me out on my lack of age appropriate progress. My friends are becoming professionals in their fields, having kids, and buying homes. Meanwhile, I’m still crashing with relatives, unable to hold down a job, or on a really off day, cook for myself.

I like my friends. They’re compassionate, intelligent, hard working people. They’re such good people, I’m afraid they’re only friends with me because they feel sorry for me. It’s a fear I haven’t been able to shake and kind of just hangs in there as I get older.

It started about the time I dropped out of high school and my complex of being unable to “cut it” began. Even though some people expressed admiration, even jealousy, for my alternative route, I just couldn’t believe them. When I looked in the mirror, I didn’t see someone doing something different, I just saw a failure.

The point is, it’s got to be soon that people are going to stop feeling sorry for me and realize the way I live my life is not admirable or endearing; how I don’t shower, can’t pick out my own clothes, or at times, drive a car. I’m waiting for someone to finally lose their patience and point out what a burden and a liability I am. Any minute now…

Disability

When I was a kid I wanted to be a truck driver when I grew up. Or a marine. Or, if you go back far enough, a monkey. I definitely did not want to be paid for being sick, aka be on disability. I didn’t know it was a thing until about middle school. That’s when I started learning about entitlement and welfare. People getting paid to be poor… it was an outrage.

But it’s not like I gave it much thought. I was busy like any other kid and teenager focusing on school and what I wanted to do for a living. I ended up loving art, and eventually computers. At age 28, I was convinced that I was going to be a successful web developer. But unfortunately, that same year I had a manic break, got suspended from college, and moved into my parents basement.

Things continued to get worse from there and at the age of just 31, I found myself applying for, and getting approved for, disability. I had become one of the people I had been warned about as a kid. I did not take it well.

I exhibited a lot of shame behaviors right away, particularly at the grocery store. For a long time I would only shop at night and use the self-checkouts (no matter how much I had in the cart) so no one would see me use my EBT card. And I tried to buy only fruits, vegetables, and whole grains. I didn’t feel worthy to have a breakfast burrito on the way to work. I certainly wasn’t worthy to have cookies and a Dr. Pepper in my lunch. Soda from food stamps? For shame!

I also hated showing my state insurance card at pharmacies and doctor offices. But some of my meds are expensive, like 1400 dollars expensive. And no one will accept just my embarrassment as currency. So there aren’t many alternatives to using Medicaid. I know I still have hang-ups because right now I’m refusing to go to the dentist. I think I might have a cavity but I’m scared I’ll get shamed for poor flossing habits and being on social security.

I’m trying to come to terms with having a disability in a first world country. I feel like if I’m sick I shouldn’t be functional, only homeless. And if I’m functional, I should be totally independent. It seems like I’ll only accept myself if I’m totally destitute or middle class and higher. But that in-between is shameful. I don’t know why.

Medication


Have you ever heard someone say they don’t want to use medicine as a crutch? That doesn’t make sense to me anymore. A crutch is a tool that helps with recovery, provides mobility, and protects from further injury.

As soon as my medication is working, I start to think I don’t need that crutch anymore. I don’t know if there’s a name for this phenomenon but I’ve never met anyone immune to it.
Intellectually I know stopping my meds because I’m feeling better is as logical as taking a drink of water and thinking, “Hey, I’m not thirsty anymore. I never need to drink water again.” I’ve pondered on medication resistance for a long time, mostly in the hope that I could cure myself of this bad habit. Here are some thoughts on why I’ve struggled.

Even change for the better scares me.

It’s hard to admit this, but every time I start coming out of a depression, I flinch. Initially, I can’t tell the difference between improvement or the beginnings of mania. So good health can scare me off. It’s out of my comfort zone and I find myself wanting to go back into familiar, more depressed territory.

I’m afraid of becoming addicted

This is something I’ve discussed openly with my doctor. I’ve been prescribed controlled substances and worried about addiction. But for me, even with a family history of addiction, the risk has been worth the benefits.

Side Effects

This is a toughie. Because side effects will happen. Everything about medicine is an investment, mostly a long-term one. But that view does not reduce how discouraging side effects can be. I took an anti-psychotic called Seroquel that made me need to eat all the time. Not want, need. I would buy a dozen doughnuts and eat them while staring at the wall. I was too manic to sit still long enough to watch t.v. so I would literally stare at the wall while eating entire boxes of doughnuts. Not to mention the headaches, nausea, weight gain, constipation, and when some drugs made me more mentally ill than I already was. Like, way more.

It’s holding me back

I do feel differently on medication. I wonder if I’m not my real self while medicated. Without my mood swings, I feel less intense and less creative. I do miss those aspects of myself. But overall, I can tap into my talents and develop my personality more fully with medicine.

I don’t have enough money

I have no money for medicine –> I need medicine to be healthy –> I need to be healthy to work –> I need work to make money –> I’m too sick to work –> I have no money for medicine.

Whenever I’m in line at the pharmacy or drive past a homeless person I think about the cycle listed above. How can people work without medicine? How can they get medicine without a paycheck or insurance? The hard truth is, some of us are too poor to afford care without help.

I feel ashamed

I’ll take medication over what people think every day of the week. I wasn’t always that way. The first time I got medication through Medicaid I felt so ashamed. I knew how much my prescription was going to cost; twelve dollars. I didn’t want to use the Medicaid but I couldn’t get around the fact that I literally did not have twelve dollars. I was unable to work full-time because I was sick. And I couldn’t donate plasma because of my blood pressure medicine. I sat in my car for a long time trying to think of some way around taking my meds. But I knew I couldn’t stay out of the hospital without them. Feeling shaky and near tears, I entered the pharmacy and presented my insurance card. I expected some kind of reaction from the pharmacist, a look of disgust or a muttered comment. The only thing I got was my medicine. That’s exactly how it should be.

I don’t want to ask for help

I used to think that I shouldn’t (such a toxic word) need medicine to help me do everyday things. I should (there it is again) be able to get up in the morning, do the dishes, drive to work, and work with people without taking a pill. I wish I could say that I broke down and started getting serious about meds without being compelled, but I didn’t. I hit rock bottom first. I wish I had taken the initiative before my condition started affecting the people around me.

It hurts my pride

There’s nothing noble about useless suffering. I spent over half my life uselessly suffering. I’d been diagnosed with mental illness for 14 years and bipolar disorder for 7 years before getting serious about treatment. Part of it was that I simply had to get over my aversion to treatment. I don’t want to turn this into an advise column but sometimes there’s no trick or method. You just have to take your medicine.

.

Self-Medicating

I was thinking the other day about the indescribable awfulness of not having a safe place inside my own head. There was a span of three or so years when the very un-fun kind of mania set in. I had excessive mental energy and slept very little, but it wasn’t feelings of euphoria I battled, but paranoia. I started hearing voices behind my door, out of the corner of the room, and from under my bed. Fears ran deep enough to frighten me into thinking the government was monitoring my thoughts. I had to take down all my beloved super hero posters because the eyes would follow and watch me. For a short time, family had to take shifts watching me during the daytime. I wasn’t suicidal, I was simply too terrified to be left alone.

My days were filled with lonely apprehension for when the sun went down. I spent as much time as I could around others, but most people need to sleep at night and go to work. Since I did neither of those things, being alone was inevitable. But even when with people, I felt alone. Not because I was lonely, but because I was scared. I felt scared all the time. There was a constant tightness in my chest and my brain was on high alert. This went on for about a year without a day off.

Since overcoming temptation in my teenage years, I had been very smug about never using illicit substances to cope with things like depression. But I had never dealt with these kinds of symptoms before. My psychiatrist had forbade me from drinking or smoking weed. Probably because of my medication and also my family history of addiction. But I was sorely tempted to ignore his instructions. Now instead of judging my friends for self-medicating , I was jealous. It seemed so easy for them. When they got out of sorts, they just got high or drunk. It felt like they were free and I was not.

One night when I was chugging Nyquil and it clearly wasn’t working, my dad asked me, “Do I need to go get you a fifth of jack?” I politely declined mixing my meds with actual alcohol but I appreciate where he was coming from. It was a particularly bad night. I’d been prescribed heavy doses of anti-psychotics a few days before and they were not working in the slightest. I was pacing the house feeling frantic about my medicine not working. I thought about my dad’s offer. I thought about contacting a friend to get some weed. I suddenly realized that I was willing to take anything I could get my hands on for some relief. It hit me all at once how judgmental I’d been towards anyone who self-medicated.

How could I have been so arrogant? Here I was, staying in my parents house, being provided for with food, medicine, shelter, and love; all the time thinking I was stronger than everyone else. That somehow I had more willpower or some such bullshit. It hadn’t occurred to me that maybe I was just luckier than other people.

Now a days when I have a few bucks to spare someone, I don’t worry that they’ll spend it on cigarettes and booze, I remain open to that possibility. Because you know what? That stuff is cheaper and more accessible than mental health care. Do I want people to drink and abuse drugs to cope? Of course I don’t. But when they do, I truly empathize.

And what I understand now is that empathy does not equate approval. I can feel what someone else is feeling without condoning what they do. But I don’t have to condemn it either. It may seem like a paradox to do neither, but it’s how I roll.

Drop Out

I’m a high school drop out. But I was a good student. Decent grades, student government, well liked etc. The reason I dropped out might seem weak to some but make perfect sense to others; I never got any sleep. And it didn’t start when I was a teenager.

Even before kindergarten I had problems dealing with exhaustion. In preschool, I would try to lay on the couch instead of playing games with the other kids. Of course this didn’t fly and I would get pulled off the couch by my arms and forced to participate. I hated it so much.

As I moved through school the problem got worse. I can still remember what it was like trying to listen to lectures and instruction. Things like art and shop classes were the hardest. Whenever I had to stand around watching an example of how to run a sewing machine or a table saw I was like, wait what? I couldn’t focus my mind and my vision and hearing didn’t seem to work well either.

I was known for falling asleep in class. Everyday after biology I had creases up and down my face from the zipper on my hoody which I used as a pillow.

Eventually my parents came to recognize how debilitating my insomnia was. By the end of middle school they were letting me miss as many days as I needed. In the 8th grade I missed 51 days. But I kept my grades up, stayed social, even was elected class president. But these things didn’t change the fact that lack of sleep would eventually cause me to go crazy and become seriously depressed and suicidal.

Towards the end of my sophomore year of high school I was sleeping probably 10 hours for every three or four days. My mom got scared watching me come home everyday to melt down on the kitchen floor. I don’t remember how open I was about wanting to kill myself but I think it was obvious I wasn’t safe. I can’t say with scientific accuracy how much of my problem was pure depression or depression exacerbated by lack of sleep, but anyone getting so little sleep is eventually going to reach a breaking point.

In high school, we got a doctors’ note allowing for more absences than was normally tolerated. But I still got dropped from classes for attendance and was flunking out of others. Administrators were losing their patience with me but my mom had lost her patience with them and the school system as a whole. She approached me about withdrawing from school. “No way”, I said, “dropping out is for pregnant girls and kids who do drugs.” I was stuck in the mode of thinking you can drive a square peg into a round hole. I was young and ignorant. I couldn’t see that there was no shame in getting an alternative education. I had to learn that it’s a perfectively acceptable way to finish high school and would still be a path to college.

The option of going straight to a local college was what tipped the scales for me. One of my brothers had attended and insisted it would solve my problem. He explained the advantages of being able to have my own schedule. I could pick and choose what I studied and when I would go to class. When he showed me I could take afternoon classes and have a three day weekend, that clinched it for me. The prospect of being able to sleep in and only spend a few hours away from home everyday seemed perfect.

Before “dropping out” I had been spending a lot of time considering my options by working with my school counselor. When it became apparent I was not going to be able to finish my sophomore year (or possibly not survive it), she was very supportive. Without ever conversing with my mother, she accepted my decision to withdraw. When I asked her if my mom should come in and sign the paperwork with me, she said with a smile, “It’s ok, I trust you.” So, I’m not sure me leaving school was fully legal. Take that conventionalism.

Suicide

When I was seven years old, I saw the movie “Groundhog Day”. That’s when I learned you could kill yourself by dropping a toaster in the bathtub. Every day of the first grade I walked home with that image flashing through my mind. As I mentally reviewed the days events; the words, “kill yourself, kill yourself, kill yourself” ran through my head. This pattern continued for another ten years until I was ready to do it.

At seventeen I was battling severe depression on a daily basis. Until one unremarkable day, I finally broke down. I was just trying to walk out of the house to go to school. All of a sudden I dropped my bag and actually fell down on my knees. My life started flashing in front of my eyes. Like a near-death experience but instead of seeing the past, I could see the future. I felt like I was being hollowed out, and then filled with a sense of absolute inevitability. I could see an empty future stretching out in front of me. Everything I might ever do; college, career, family, all of it became pointless.

The weight of depression was crushing my heart. Then suddenly I felt released from any guilt I was feeling about my mom finding my dead body.

This relief turned into a moment of pure clarity: my time to die had mercifully come at last. I now understood that since my suffering served no purpose, then my life had no meaning.

Then everything turned into anger. I directed all of it heavenward. How could God do this to me? In my mind, only a loving God should exist. But no loving God would take me to a place like this. There must be no God, I thought.

I stood up and started towards my bedroom closet to hang myself with a belt. But before I made it to the door, I had a thought: “I should say a prayer before I die.” It made sense because being ready to die feels kind of like a spiritual ritual. Out of this life and into the next. I knew the other side was waiting for me. A prayer made my premature exit from this life feel kind of official. It made sense me.

Then I remembered something I had learned from seminary class about the New Testament. I had been taught that Jesus would take away my burdens if I laid them down at his feet. I wasn’t sure what that meant. But I knew beyond a shadow of a doubt that if that theory wasn’t true, I was going to die. I knelt down again, this time to pray. I opened that prayer with a declaration of hate for God. “How could you do this to me? I’m supposed to be your child. What kind of a sick Father leaves his child in such darkness? You can’t possibly up there, watching over me”.

As my thoughts progressed I realized my whole heart was aching to know if God was real. Most importantly, to know if He is a God of love. And could he possibly, just possibly, love me.
So I kept praying. I asked if anyone was up there listening. I told Him I didn’t need a cure, just to know if I was loved. If I was loved then I could pass that love on to someone else, and my suffering would serve a purpose.

I said amen and then sat still for a few moments waiting for an answer. Nothing happened so I stood up. The moment I was on my feet, a powerful sensation of love came pouring into me. It flooded my whole body from the top of my head down to the tips of my fingers and toes. And without a doubt I knew: I am totally and unconditionally loved. There was no sin-stained corner of my spirit that His love did not penetrate. I was powerless to feel unworthy. I now knew that nothing I could ever do would ever hold back the power of God’s love for me. I know it wasn’t strength or willpower that saved me, it was the Atonement of Jesus Christ. I just had never put it to the test before.  

That’s why I see it from the perspective of being spared. Like the way someone miraculously survives a car crash. I don’t know why some people overcome suicide and others don’t. I’ve debated a lot in my mind about how personally responsible someone is for killing themselves. I’ve come to the conclusion that sometimes mental illness is just terminal. Like how some people beat cancer and some don’t. No one should blame themselves for losing a loved one to suicide anymore than for losing someone to a disease.

I have also wondered, what the very least a person can do when they are the most depressed. After a lot of pondering on my experience with suicide I think I’ve come up with an answer. I was taken to a point where no earthly force could help me return. But in the moment before I was going to lose my life, I was able to say a prayer. I’m not the one who writes the doctrine but I believe that even in the darkest and most difficult circumstances we can communicate with God.

I would like to tell people who are considering taking their own life that I totally get it. There’s nothing inherently wrong with wanting to kill yourself. Yeah, it’s a dark place and it can feel shameful to be there. It’s not because you’re weak or a bad person. Ironically, something that I did learn from being in the darkest place I’ve ever been is that I am loved unconditionally. From that experience I know that God loves all of His children. No matter how broken you are, you are still wanted and needed. Sometimes all we can give is the opportunity for someone else to serve us. If the only strength you have is to just keep breathing in and out, that is enough for God. Just by being here, you are giving the world a gift.

Barely three years after this experience, I was in college and very depressed again. I didn’t have a doctor and was on no medication. I still thought depression was a normal state to be in. After several months and no relief in sight, I had an epiphany: it doesn’t hurt anymore if you give in and give up.

I felt very enlightened and finally able to put it into words. I didn’t feel worthless, I felt hopeless. I realized that even though I did well in school, was a talented artist, and probably had a career in the arts ahead of me, it was all meaningless. I realized that no matter how successful I became, I would never gain happiness and satisfaction from my accomplishments. Even though the world is in color, I could only feel gray. Nothing I did mattered anymore and there was no reason to keep trying.

I started feeling a burden being lifted again. This time it wasn’t a spiritual experience, but a counterfeight one. A peaceful feeling descended on me because I made a leap from hopelessness to relief. I realized that if my efforts to find happiness would always be fruitless, then I didn’t need to try anymore.

Now that the pressure was off, I could leave school and leave all my possessions behind. I had become free of my hopes and dreams. I started giving away all my art supplies and camera equipment. These things were now just a reminder that none of my favorite things could make me happy. This behavior weirded out a lot of people. After giving her all my camera equipment my friend told me, “I’ll just hang on to this until you want it back.” I can still remember the concerned look on her face.

It seemed like no one understood my new found freedom. They didn’t realize I had broken the code to being rid of depression. Just give up! I felt like a genius.
I was totally ready this time. No prayers or motivation to try to get out of the hole I had fallen into. Because there was no hole for me. I was flying among the clouds this time. “Happy” and at peace for the first time in what felt like my entire life.

Luckily for me, my mom was not quite ready for me to call it quits. I don’t know if anyone really understood what was happening to me but I’m sure somebody’s alarm bells were going off.
She “happened” to come across a new method of testing for mental illness at a place called the Amen Clinic. I was pretty indifferent about it except for the fact that I made it very clear that this was the last thing I was going to try. No more doctors or clinics after this.

So we loaded up the car and drove to Washington. I got injected with radioactive isotopes and got a magnetic scan of my brain. According to their metric, not only was I bipolar type one, but very bipolar type one. On their scale of 1 to 4, I was a 3.5. Nice. They told me to get a myself a doctor and a prescription for a mood stabilizer. Which I did.
After that, everything changed. Equal to how ready I was to kill myself, after the right medicine, I was finally ready to live.

Suicidal ideation still rears it’s ugly head. I am now 33 and would never say time of post-treatment has been easy. Every year seems to bring new challenges. I’m still sick, I still take a lot of drugs, I still see a lot of doctors. And sometimes, I still want to kill myself.
So what do I do? I’ve learned not to resist what’s happening without giving up and giving in. The act of resistance creates additional stress. The thing to resist is shame. So I acknowledge what’s happening and that it’s extremely unpleasant. But the more I let it move through me, the faster it goes away. I let myself cry as hard as I need to and most important of all, I find someone to talk to. You’d be surprised how quickly suicide dies when it’s brought out of the shadows and into the light.

Hygiene

I feel like it’s important to talk about hygiene. Or the lack thereof. And I ask myself questions about it. You know that philosophical question, ‘if a tree falls in a forest and there’s no one around to hear it, does it make a noise’? I wonder the same thing about body odor. Like, ‘If I don’t shower and there’s no one around to smell me, do I still stink’? Should I care?

I’m not motivated to be hygienic by human proximity. You know what does motivate me to change my underwear? The irrational fear that today might be the day I have to go to the hospital in an ambulance and they’ll cut my clothes off and be like, “When was the last time this woman changed her underwear!?” So I’ve got that going for me.

Showering is a different story. I know that hygiene is a good benchmark for determining how depressed I might be. But even when I’m feeling level, showering is such a chore. And there’s no way it’s happening if my fingernails aren’t short or if my hair is “long”. I buzz my head so that means if my hair is touching my ears or forehead I turn into a cat that refuses to get wet.

Right now it’s almost as if I’m playing some kind of game of chicken or a having staring contest. How many layers of body soil can I let build up until I bust out the loofah? I know I showered on a Tuesday. But I know it wasn’t last Tuesday. Or the one before that. I wish I could tell you that I gross myself out. I don’t.

Denial


I used to be in a co-dependent relationship with myself. Bipolar was my abuser (or my drug, depending on the day) and denial was my enabler (or protector, depending on the day). Although sometimes I think they would occasionally switch places, just to throw me off. I lived with a duality that blows my mind to this day. Some days my Bipolar would beat me down and tell me I was nothing, on another, lift me up and tell me I could do anything. Denial was there too, helping me to ignore the consequences of having a mood disorder. It doesn’t make any sense. But you know what, abusive relationships never do.

Insanity thrives within this kind of codependency. And I mean classic insanity: doing the same thing over and over and expecting different results. I don’t mean to brag or anything, but I am excellent at being insane. I’ve never held a job longer than a year, finished school (three colleges, two of them twice), or stayed in a relationship longer than three months. I’m not ashamed of my life history, and the pattern that I’ve described is not indicative of insanity in itself. It’s not that I’m lazy or give up easily, quite the opposite, I work hard at always not finishing everything. I’m being tongue in cheek and a little cynical. Insanity demands a great amount of effort and one other key component: Denial.

It pays off to be in a relationship with Denial. It will protect you from any form of self-honesty, move you past consequences, and support you in your bad decisions. For me, Denial helped me believe I could continue with my pattern of depression and mania without consequences. In that sense, I was very much like an addict. Co-dependency, addiction, denial.. those traits all live inside mental illness in some way. They weave together to create amazing forms of dysfunction.